Yesterday was Ryder’s two month well baby checkup. We have been so anxious to see how much weight she had gained since the procedure, the start of the new medicines and the new high calorie diet.
Well things did not go as we had hoped. At two weeks Ryder weighed 8.6 lbs and yesterday (seven weeks later) she weighed 9.2 lbs. She is in the .8 percentile on the growth chart for weight.
Here are pictures of Ryder at two weeks (top) and now (bottom):
Until I decided to go back and compare pictures I was convinced the doctor was wrong and the scale was wrong. Now I can see that she has grown longer for sure but there is not much change in her weight at all.
We have a cardiologist appointment on next Tuesday and hopefully we will have some answers then. Our regular pediatrician mentioned a feeding tube and we will be discussing that with cardiologist as well.
Right now Andy and I are both at the point where we realize the medicines are not working and clearly some kind of intervention needs to be done. Obviously we don’t want anything to have to happen, but we are at peace with the options of open heart surgery or feeding tube or whatever they think she needs. We just want our baby to be better and to thrive.
Yesterday was obviously very discouraging and disappointing. When the doctor said words like “failure to thrive” and “feeding tube” things started getting really blurry. No one ever wants to hear those things.
But yesterday it hit me. What a beautiful blessing and story we can tell. We can start now by saying that God is carrying us through this time of heartache. We can be a testimony in how we are handling this trial. (And I am not always handling it well- but that is my biggest prayer that I am dealing with it in a manner that pleases the Lord.) And one day- hopefully very soon- we can comfort people who are hurting and tell them of Ryder’s healing. We can comfort parents who are having to wait for answers that no one wants to have to wait for.
Again, I want to say thank you to all of you praying for us. They are helping more than you will ever know.