Ryder Amelia

two month checkup

Yesterday was Ryder’s two month well baby checkup. We have been so anxious to see how much weight she had gained since the procedure, the start of the new medicines and the new high calorie diet.

Well things did not go as we had hoped. At two weeks Ryder weighed 8.6 lbs and yesterday (seven weeks later) she weighed 9.2 lbs. She is in the .8 percentile on the growth chart for weight.

Here are pictures of Ryder at two weeks (top) and now (bottom):

Until I decided to go back and compare pictures I was convinced the doctor was wrong and the scale was wrong. Now I can see that she has grown longer for sure but there is not much change in her weight at all.

We have a cardiologist appointment on next Tuesday and hopefully we will have some answers then. Our regular pediatrician mentioned a feeding tube and we will be discussing that with cardiologist as well.

Right now Andy and I are both at the point where we realize the medicines are not working and clearly some kind of intervention needs to be done. Obviously we don’t want anything to have to happen, but we are at peace with the options of open heart surgery or feeding tube or whatever they think she needs. We just want our baby to be better and to thrive.

Yesterday was obviously very discouraging and disappointing. When the doctor said words like “failure to thrive” and “feeding tube” things started getting really blurry. No one ever wants to hear those things.

But yesterday it hit me. What a beautiful blessing and story we can tell. We can start now by saying that God is carrying us through this time of heartache. We can be a testimony in how we are handling this trial. (And I am not always handling it well- but that is my biggest prayer that I am dealing with it in a manner that pleases the Lord.) And one day- hopefully very soon- we can comfort people who are hurting and tell them of Ryder’s healing. We can comfort parents who are having to wait for answers that no one wants to have to wait for.

Again, I want to say thank you to all of you praying for us. They are helping more than you will ever know.

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9 thoughts on “two month checkup

  1. Tiffany, a friend of mine posted this verse today on Facebook and I immediately thought of little Ryder. Psalm 34:18 “The Lord is near the brokenhearted; He saves those crused in spirit.” Since little Ryder’s heart is truly broken now, know that God is near her. We’re keeping you all in our prayers. Wish you were closer so we could help out more!

  2. In good times and bad times God is always worthy of our praises. The smiling pictures of Ryder brings such joy each day. God will Bless her. I love you.

  3. Praying for all of you! Especially praying that Ryder gets really fat! ha! God will give you peace about the right decisions for her. Until then your faith is an encouragement to others struggling.

  4. I just know God is good all the time and His will is perfect. She is so happy and so beautiful, I just know His hand is on her and you. You and Andy and such good examples of God’s goodness in time of strife. You are both strong and Ryder senses that strength. Love to all of you. Aunt B

  5. Praying and thinking of your family and little Ryder especially! She may not be the chubbiest but she’s the happiest, smiley-est 2-month-old I’ve ever seen! šŸ™‚ Hang in there!

    “You will keep in perfect peace those whose mind is steadfast because they trust in You.” Isaiah 26:3

  6. Tiffany…you all are in our prayers. What a testimony to God for your strenght and faith…for it is through God that we get our strength when we come to a difficult time in our lives. Keep your eyes on Jesus the Healer of ALL things.

  7. Tiffany, my thoughts and prayers are with you, Andy, and the babies!!! I know this must be hard. Everything will turn out in the end. Ryder will get better. Stay positive and never give up faith and hope!!

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